13 Matching Annotations
  1. Oct 2022
    1. 5 publications in a year and he's roughly spending let's say $2,000 that's $30,000 that's the cost of 00:04:11

      I admittedly hadn't realized it could get to quite this high in costs. Thinking to some of our most prolific researchers in my department, I realize now that there could easily be a bit of a self perpetuating cycle: the labs/researchers who have the largest grants, then have the greatest flexibility to pay publication fees, which then, of course, helps drive their momentum for more grants.

    2. the person with the very expensive piece of equipment isn't necessarily the best scientist

      This is so simply but powerfully put. Money doesn't equate to innovative thinking and moonshot solutions to health, climate, etc. challenges. But, by keeping cutting-edge research under lock and key, there's no real opportunity to level the playing field or forge collaborations with, say, early-career scientists and researchers who might be particularly positioned to think outside the box.

    3. make sure that the data the results are available freely available to the public I'm in the university so the universities subscribe to a large amount of journals but I know that many of my 00:01:35 industry collaborators that they always have to pay to look at some of the journals that you know charge a fee for downloading content so for me I think

      It's funny, I actually never once thought of it this way – that so much (I would assume, the majority, but I don't know for sure) of published work is backed by taxpayer dollars in the form of federally administered grants, so to keep it behind a paywall does seem like a form of denying taxpayers access to the research they helped fund.

  2. Sep 2022
    1. what's very helpful for events is to also send slides or other materials 00:44:18 available ahead of time to participants so people are able to look it through prior and follow along during the presentation next slide please so what's needed at all virtual meetings first you need you and your

      This is actually really helpful to flag in this because I had never thought of sending slides in advances as an accessibility need, per se. I honestly viewed it more as a convenience or perk for guests, which reflects the fact that I never actually stopped to think how big a difference this must make to anyone who has any accessibility request whatsoever – not just from a audiovisual accessibility standpoint or an IT standpoint, but also, for those who might face language barriers (which is ESPECIALLY significant in the sciences because I've spoken to many researchers who grew up with a non-English language as their primary language, who then went on to study in an English speaking country, and were later invited back to present in a country that speaks their primary language and they realized they had to basically learn all the terminology in what is otherwise their primary language. In other words, it's not even just a help to those whose primary language may not be English, rather, anyone who is multilingual (or, of course, anyone who is less familiar with science terminology) may not necessarily follow any science terms, etc. referenced as easily, so having slides in advance could help bridge this communication gap.

    2. nto your plan you implement the accessibility from the start and then you're not going back later and saying this is taking so much time to add this accessibility because it's already there

      A thousand times yes to this point. I can't even count how many times I've told my colleagues at work that we need to implement ADA-compliant practices from the get-go because a.) we simply can't view omitting portions of the population as an option, and b.) however much "time" we may feel it takes to add alt text and incorporate other practices is still significantly less time than it would require us to go back and add in those elements after the fact. If we build the habits right off the bat, it will become second nature.

    3. academic chatter both for to capitalize that will be read fine by screenwriter but we get to phd chat since this is all in lower case a screen reader we read that as one word i don't

      Wow, I'm both embarrassed and so appreciative that they pointed this out because I manage social media as part of my role at work (and I've been in at least half a dozen social media trainings that touched on ADA topics) and no one has actually ever pointed out to me that, in hashtags, capitalization matters for readers. I actually was kind of led to believe that hashtags are more or less bad all around for ADA – and my understanding is they are when they're overused in the body of the actual tweet – but this little fact is helpful both for ADA compliance and for realizing I don't actually need to nix them altogether, either.

    4. um also um people often refer to things like cane and walkers or people will say physical ability and so instead you could say somebody is a wheelchair user right they use a wheelchair to facilitate their movement 00:11:06 throughout the world you can refer to the stall or the parking space or the programming as accessible right because that's what it is it's accessible to people of all physical abilities right um 00:11:18 you can also refer things like canes and walkers instead of thinking of them as like stigmatized things you can refer to them as mobility aids because that's what they are they allow people to be mobile um and also you can say instead of physical ability you can just say

      I love this note about emphasizing the difference between "wheelchair bound" and what wheelchairs really represent – which is the means by which someone with a particularly disability that limits their mobility uses to increase their access. A lot of this language (and the Language, Please discussion) really seems to highlight how semantics – even just a single word or the order in which a word is used – could completely change the tone from negative to positive or vice versa. In addition to how this either perpetuates or combats stigma, it also reframes a reader's/viewer's/listener's mindset away from viewing something as "bad" or "good."

      – Alyssa Tomlinson

    5. humanity for their disability um and while you should always ask disabled people what language they prefer and there are some disabled people that do prefer person-first language um oftentimes when able people use 00:09:25 person-first language it is kind of this perpetuation of the medical model right the idea that disability is somehow inherently um dehumanizing right and so you need to remind yourself that the disabled person is a person before they are something 00:09:38

      This is so interesting to me because (as I mentioned in my discussion post) I only just found out about a "Person-First Language" resource by way of someone who offered feedback about a workshop title (addressing obesity) organized by an external partner organization. The person who reached out to me was very insightful and cordial in her interaction, and she also explained her background knowledge and education in "Person First Language," and yet it hadn't even dawned on me in my interaction with her that there might also be opposing views by others who identify as part of the group for whom she was speaking. It really drives home the importance of remembering that there are different perspectives and no one perspective is the "right" or "wrong" perspective.

      – Alyssa Tomlinson

    6. but we do not view needing corrective eyewear as a disability why do we not view needing corrective eyewear as a disability in our society right it's because glasses 00:07:11 are widely available and accessible to people they provide a perfect accommodation for the disability right so you can get a glasses prescription that will return your vision to at or near 2020 vision uh 00:07:24 and there is no social stigma anymore about wearing glasses right in fact many people buy fake glasses without corrective lenses in them for a fashion choice right and so even though if you didn't have your glasses there

      I had never thought of this analogy but this is so effective – almost laughably so. This makes so much sense and is almost quite sad to think about how this could be the experience for those whose lives are impacted by other medical conditions, it's just a matter of how they are taken into consideration (or, not) by society.

      – Alyssa Tomlinson

  3. Aug 2022
    1. body and get the full-blown symptoms of being sick you take a little bit of the bad guy and putting into your body and your body can still recognize it as a bad guy and so now you have a bunch of antibodies being made antibodies fight

      I also think that by simplifying this this way – by describing it as "you take a little bit of the bad guy" and put it into your body, it might actually have the reverse effect of what this video is trying to achieve. In the case of mRNA vaccines, it isn't live virus that's being injected into a person, but to me, this summary makes it sound as though it is.

      – Alyssa Tomlinson

    2. sure that they can't hurt us anymore all right but you can't get these guys unless you get sick or invaded by a bad guy that's when these things come out so there's no bad guys then there's no good guys okay because

      I almost feel like – unless this video were made specifically for children – this is almost too simplified. For example, I once listened to an episode of the Dope Labs podcast in which they explained how vaccines work in the context of the coronavirus. One thing I found most effective about the podcast was they flat-out acknowledged how/why vaccines are still considered effective even when there are numerous "breakthrough" cases. (In summary, they talked about how vaccines create a protective "cocoon" in communities and that as more and more people are vaccinated, the virus struggles to break through and mutate at a fast rate, which thus allows scientists to keep ahead of the virus with new iterations of vaccines.) To me, this video would be more effective if it flat-out acknowledged that, yes, some people who are vaccinated still get the virus, but here's why it's still worth it to get the vaccine.

      – Alyssa Tomlinson

    3. so for this vaccine the kova vaccine all you need is a little bit of that mrna spike protein to put inside your body just a little bit and that's enough for your body to recognize it and make enough antibodies okay so you don't have

      I actually wish she had explained this somewhat differently, because to me, it sounded as though mRNA vaccines are essentially the same thing as traditional vaccines where it's essentially a tiny portion of live virus. I feel like this might have been a missed opportunity to explain what makes mRNA vaccines truly unique – and the fact that mRNA technology has been in development for years, which is what made it possible for this vaccine to be turned around so quickly. It's almost as if there's potentially damage done if you oversimplify the science. In my opinion, if you strike the right balance between simplifying or "translating" the science and speaking only in technical jargon, you have the ability to leave someone feeling empowered that they have new, scientific knowledge about a certain innovation/medicine/invention/etc.

      – Alyssa Tomlinson

    4. hi there heartfelt poetry 7 and thank you so much for trusting me to answer this question for you and no it's not a silly or ignorant question especially with all of the misinformation that's been floating around lately so no it's not ignorant and i know that trust has

      I appreciate that Dr. Tolson acknowledges that the contributor's question isn't silly, and that, instead, she appreciates the contributor's trust in asking her the question. I think this is especially important given that it can be intimidating to ask an expert – particularly, a medical expert – a question concerning a medical issue that might unfortunately carry stigma/misperceptions. This introduction, off the bat, establishes that everyone should feel comfortable asking questions when it comes to issues of health. So much misinformation/misconceptions about medical sciences likely prevail solely because those with questions feel embarrassed because there is a perceived large knowledge gap between themselves and the "experts."

      – Alyssa Tomlinson (my apologies, I realize my display name has my maiden name because of the email address to which it's tied!)