448 Matching Annotations
  1. Nov 2018
    1. “It’s about embracing the inscrutable nature of human interactions,” says Chang. Evidence-based medicine was a massive improvement over intuition-based medicine, he says, but it only covers traditionally quantifiable data, or those things that are easy to measure. But we’re now quantifying information that was considered qualitative a generation ago.

      Biggest challenges to redesigning the health care system in a way that would work better for patients and improve health

    2. “Our biggest opportunity is leaning into that. It’s either embracing the qualitative nature of that and designing systems that can act just on the qualitative nature of their experience, or figuring how to quantitate some of those qualitative measures,” says Chang. “That’ll get us much further, because the real value in health care systems is in the human interactions. My relationship with you as a doctor and a patient is far more valuable than the evidence that some trial suggests.”

      Biggest challenges to redesigning the health care system in a way that would work better for patients and improve health

    3. Duffy points to the increase in health care interactions online and adds that he would like to see a pervasive culture of in-person care as last resort. “If every organizational decision, technology decision, process decision — assuming all the payment stuff, that’s kind of ticket of entry, transpires — if you view in-person as last resort, that will help pull systems across the country to a more consumer-forward Uber-like experience,” he says

      Biggest challenges to redesigning the health care system in a way that would work better for patients and improve health

    1. As with other forms of value-based health care, patient-centered care requires a shift in the way provider practices and health systems are designed, managed, and reimbursed. In keeping with the tenets of patient-centeredness, this shift neither happens in a vacuum, it driven by traditional hierarchies in which providers or clinicians are the lone authority. Everyone, from the parking valet and environmental services staff to c-suite members, are engaged in the process, which impacts hiring, training, leadership style, and organizational culture. Patient-centered care also represents a shift in the traditional roles of patients and their families from one of passive “order taker” to one of active “team member.” One of the country’s leading proponents of patient-centered care, Dr. James Rickert, has stated that one of the basic tenets of patient-centered care is that “patients know best how well their health providers are meeting their needs.” To that end, many providers are implementing patient satisfaction surveys, patient and family advisory councils, and focus groups, and using the resulting information to continuously improve the way health care facilities and provider practices are designed, managed, and maintained from both a physical and operational perspective so they become centered more on the individual person than on a checklist of services provided. As the popularity of patient- and family-centered health care increases, it is expected that patients will become more engaged and satisfied with the delivery of their care, and evidence of its clinical efficacy should continue to mount.

      Cultural shift to patient-centered care

    2. The concept of patient-centered care extends to the treatments and therapies clinicians provide. Not only are care plans customized, but medications are often customized as well. A patient’s individual genetics, metabolism, biomarkers, immune system, and other “signatures” can now be harnessed in many disease states — especially cancer — to create personalized medications and therapies, as well as companion diagnostics that help clinicians better predict the best drug for each patient.

      Patient-centered care via personalized medicine

    3. Strict visiting hours and visitor restrictions are a thing of the past in a patient-centered care model. Patients are given the authority to identify who can visit and when. Family members (as defined by the patient and not limited to blood relations) are invited to visit during rounding and shift changes so they can be part of the care team, participating in discussions and care decisions. When not in the room with the patient, they are kept informed of their loved one’s progress through direct and timely updates. A patient-centered care hospital’s infrastructure encourages family collaboration through a home-like environment that not only meets the needs of the patient, but also meets the needs of family members. For example, maternity wards are being redesigned with family-friendly postpartum rooms that can accommodate the mom, new baby, and family members, who are encouraged to spend up to 24 hours a day together in the room to foster family bonding.

      Patient-centered care in the hospital

    4. The primary goal and benefit of patient-centered care is to improve individual health outcomes, not just population health outcomes, although population outcomes may also improve. Not only do patients benefit, but providers and health care systems benefit as well, through: Improved satisfaction scores among patients and their families. Enhanced reputation of providers among health care consumers. Better morale and productivity among clinicians and ancillary staff. Improved resource allocation. Reduced expenses and increased financial margins throughout the continuum of care.

      Benefits of patient-centered care

    5. Patient- and family-centered care encourages the active collaboration and shared decision-making between patients, families, and providers to design and manage a customized and comprehensive care plan. Most definitions of patient-centered care have several common elements that affect the way health systems and facilities are designed and managed, and the way care is delivered: The health care system’s mission, vision, values, leadership, and quality-improvement drivers are aligned to patient-centered goals. Care is collaborative, coordinated, and accessible. The right care is provided at the right time and the right place. Care focuses on physical comfort as well as emotional well-being. Patient and family preferences, values, cultural traditions, and socioeconomic conditions are respected. Patients and their families are an expected part of the care team and play a role in decisions at the patient and system level. The presence of family members in the care setting is encouraged and facilitated. Information is shared fully and in a timely manner so that patients and their family members can make informed decisions.

      Elements of patient-centered care

    6. In patient-centered care, an individual’s specific health needs and desired health outcomes are the driving force behind all health care decisions and quality measurements. Patients are partners with their health care providers, and providers treat patients not only from a clinical perspective, but also from an emotional, mental, spiritual, social, and financial perspective.

      What is patient-centered care?

    1. Koh et al. (11) detailed a cycle of crisis care elaborating the nature of high medical costs, possibly resulting from fear and denial. First, an individual is in need of medical help, so he or she goes to a physician's office where the staff asks the individual to fill out a complex and confusing form. The physician examines the patient and explains the condition and treatment options using medical jargon. Numerous prescriptions, laboratory tests, and referrals are given without confirmation of the patient's comprehension. The staff sends the patient home with complicated instructions. Inevitably, the patient may consume medication incorrectly or miss follow-up appointments, and his or her condition worsens. Eventually, the patient presents to the emergency department, and the hospital staff develops a new treatment plan. Again, no one confirms the patient's understanding. When the patient is discharged, he or she is likely to get sick again and repeat the cycle (11)
  2. Oct 2018
  3. Sep 2018
    1. We want better children—but not by turning procreation into manufacture or by altering their brains to gain them an edge over their peers. We want to perform better in the activities of life—but not by becoming mere creatures of our chemists or by turning ourselves into tools designed to win or achieve in inhuman ways. We want longer lives—but not at the cost of living carelessly or shallowly with diminished aspiration for living well, and not by becoming people so obsessed with our own longevity that we care little about the next generations. We want to be happy—but not because of a drug that gives us happy feelings without the real loves, attachments, and achievements that are essential for true human flourishing.

      This paragraph draw my attention. It is a important notice for this and the future generation. There are so many things that we are wondering and fight for but there are some temptation and wrong expectation in our world. i think that people really need to think about what are they wondering, such as happiness, career, family. after we recognize what we want then we need to figure out the right way to achieve our goal.

  4. Aug 2018
    1. The technical and theoretical details underlying clinical informatics are beyond the scope of this chapter. What follows is a concise introduction to topics and resources of general interest in this field, presented to help clinicians use information technology for the benefit of patient care.

      This is interesting!

  5. May 2018
    1. There are many resources available to help you and your health care proxy develop a care plan. These are merely suggestions to get you thinking about possible scenarios and topics to discuss. I hope you found this blog informative, and urge you to share it with anyone who does not have a health care proxy. We always think it will never happen to us, but what if it does? It's best to be prepared!

      The article highlights the importance of what a good health proxy looks like and how they go about helping a patient in their most sensitive moments of health and later on in their lives. Potentially, this could be a good chance for a client's wishes to be fully respected by someone who knows of their values and preferences. It also encourages the reader to be prepared incase they are faced with this decision some day. Many members of the elder population are asked about healthcare proxies during the beginning of any hospitalization. More awareness of what a health proxy is and what social supports a patient can count on helps to assure quality care and dignity in health and death.

    2. Further, a doctor, medical center, hospital, EMT, and even assisted living staff can make decisions regarding your healthcare, treatment methods and type of medical care to provide you if you are not married, over 18 years old, and do not have a health care proxy in place

      Medical decision making has very specific in rules to protect the rights of the patient. The rules can vary according to a patient's age, marital status, and wether or not they signed a health care proxy document in the first place.

    3. Health care proxy: An advance medical directive in the form of a legal document that designates another person (a proxy) to make health care decisions in case a person is rendered incapable of making his or her wishes known.

      The medical definition of a health care proxy- a legal medical document that transfers power of medical decision making from a patient to a trusted person.

    1. When the patient is unwilling or unable to make medical decisions, the health care proxy is activated and he or she is obligated to make all health choices on behalf of the patient. These may be related to withdrawing or withholding life support, instituting artificial liquid feeding, attempting resuscitation and even whether or not to participate in autopsy and organ donation.

      Any decisions regarding the care and body of the patient are headed over to their health proxy, who assumes any medical decision making responsibilities from there.

  6. Feb 2018
    1. First, the industry is demanding it. Those who are paying for healthcare—the government, employers, patients, commercial health plans—want more value for their healthcare dollar. The transaction-driven, fee-for-service model has helped contribute to a fragmented healthcare system that has led to major challenges in healthcare. This fee-for-service model is simply not sustainable.

      Those who are paying for healthcare—the government, employers, patients, commercial health plans—want more value for their healthcare dollar. The transaction-driven, fee-for-service model has helped contribute to a fragmented healthcare system that has led to major challenges in healthcare. This fee-for-service model is simply not sustainable.

  7. Jan 2018
    1. reliability and accessibility of big data will help facilitate increased reliance upon outcomes-based contracting and alternative payment models.

      reliability and accessibility of big data will help facilitate increased reliance upon outcomes-based contracting and alternative payment models.

  8. Dec 2017
  9. Oct 2017
    1. He calls for more thoughtful engagement with the notion not so much of making things, but of fixing them, repurposing them in their diminishment and dismantlement—not of making new, but of making do, and of thereby engaging what he calls ‘an ethics of mutual care’—with each other, the world around us, and with the (quite literal) objects of our affection (Jackson, 2013, p. 231). This is a source, he says, of ‘resilience and hope’ and it’s a way of being in space and time that has deep feminist roots (Jackson, 2013, p. 237).

      My initial thoughts were: sustainability, repurposing, upcycling. And yes, I agree that there is a resilience and hope in that. How Jackson made the leap to 'feminist roots' is not clear to me. Page 11 of this PDF goes into more detail: https://sjackson.infosci.cornell.edu/RethinkingRepairPROOFS(reduced)Aug2013.pdf.

      After reading this PDF, I think he is saying that this idea of sustainability and repurposing or 'an ethics of mutual care' can be sourced back to feminist scholarship that came about in the '70s through the '90s'. Unfortunately, I can't see any deeper meaning than that or why this must be feminist in nature and not simply human nature. Why gender comes into this, I do not know. But then again, perhaps my understanding of what it is to be feminist is flawed?

    1. ‘I don’t care about me.’

      The girl is expressing a resignation towards herself, responsibility for what may come, and an indifference to her well being. Not for the sake of simply giving up because things are hard, instead, because she realizes that her fight for herself in the face of her over bearing partner is lost.

      She does not hold control over her own body. She is not one for an abortion; she does not want it. Yet her male partner persists and judging from their current travels, she is not in power to do anything of it.

      If she were to throw off her pressuring companion, run away, and embark on some personal rebellion for the sake of herself and the baby, she might be able to find herself. Yet it is not so. And instead, she doesn't care.

  10. May 2017
    1. Section 139A of the Internal Revenue Code of 1986 is amended by adding at the end the following new sentence: “This section shall not be taken into account for purposes of determining whether any deduction is allowable with respect to any cost taken into account in determining such payment.”.

      This is important.

  11. Feb 2017
    1. Es handelt sich um eine Politik ohne Zwang, die biopolitische Interessen in die Individuen hineinverlagert. Der gesellschaftliche Zugriff auf den weiblichen Körper bleibt bestehen, es sieht aber nach Freiheit aus, argumentiert wird mit "optimalen Gesundheitsentscheiden" oder "Risikominimierung". Dieser individualisierte Optimierungsimperativ macht es letztendlich schwierig zu erkennen, dass Kinderbekommen kein privates Ereignis ist, sondern auch Teil von gesellschaftspolitischen Dynamiken. Auf diese Weise wird auch das große Thema Care-Arbeit ausgeblendet.
  12. Jan 2017
    1. The science of variation like the clinical gaze was believed to unearth all sides of truth and was therefore effectively applied as a form of industrial management in order to cope with population growth.

      This debate/division continues today in the care v. cure debate and in various approaches to bedside manner

  13. May 2016
  14. Jan 2016
    1. Is Google Making Us Stupid?

      Didn't read the article before making this annotation, but this type of "clickbait" whether or not this is for or against Google should stop. It's not literary playfulness, nor exciting rhetoric. It's plain stupid and annoying to title things just to get people to read it. If what you have to say is profound or worth the time, you will get your viewers. You can do this without stupid titles...

  15. Oct 2015
  16. Sep 2015
  17. May 2015
    1. Or more plainly: attention on social media both compensates for and is the logical endpoint of commoditized care work.

      I don't fully understand this but it was the most intriguing sentence in the piece for me. Are our social media services doing the care work of attending to our need for in-control socialization? Are they our new safe spaces that replace the therapist's office? I also wonder about whether people who work in a caring capacity have a unique relationship with social media.

  18. Feb 2015
    1. The disaggregation of news in the Internet age has inverted this relationship, and made news outlets hypersensitive to the interests of their readers. This is a positive development. It’s good that the media covers stories that its constituents are interested in and want to read about. It’s good when news outlets are connected to the communities they serve.

      I'm not so sure this is the case across the board. Our desires don't always serve us.

      I sometimes do want gatekeepers to prevent me from hurting myself.

      I don't know how to translate this into advice for the next generation of media, though.

  19. Oct 2013
    1. we feel friendly to those who have treated us well, either ourselves or those we care for, whether on a large scale, or readily, or at some particular crisis; provided it was for our own sake.

      reason we have friends; common interests, dislikes, problems, etc.